On 30 June 2026 (14:00 to 17:00 CEST), the HEREDITARY project will host the HEREDITARY Advocacy Workshop, an online event led by the European Brain Council (EBC) that will bring together researchers, patient advocates, policymakers and civil society representatives from across Europe to explore the connection between scientific research and European policymaking.
The workshop will provide a unique opportunity for participants working in areas related to brain diseases, neurodegenerative disorders, the gut-brain axis, artificial intelligence, and health data governance to better understand how scientific expertise can inform policy discussions and decision-making processes at the European level.
Designed as an interactive and engaging event, the program combines expert insights, multi-stakeholder dialogue and hands-on activities that encourage participants to explore the science–policy interface from different perspectives.
Bridging the Gap: Neuroscience Research and EU Policy
The first session will introduce participants to the European policymaking landscape and explore how scientific evidence contributes to legislative and regulatory developments. Through concrete examples and case studies, participants will gain insights into key EU policies relevant to brain and hereditary disease research. The session will also address emerging neuroethical challenges at the intersection of genetics, neuroscience and public policy.
From Research Findings to Policy: Panel Discussion and Q&A
An interactive panel discussion will bring together perspectives from policy, research and civil society to discuss how scientific findings can be translated into policy-relevant dialogue. Speakers will explore effective science communication, engagement with EU institutions and opportunities for researchers interested in contributing to policymaking throughout their careers. A live Q&A session will allow participants to engage directly with the panelists.
The Policy Table: Stakeholder Simulation Exercise
In the final session, participants will take part in a policy simulation exercise inspired by real-world challenges related to hereditary brain diseases, neurodegenerative disorders, gut-brain health, AI diagnostics and other HEREDITARY research themes. By assuming the roles of different stakeholders, including researchers, patient advocates, policymakers, legal experts and industry representatives, participants will experience firsthand the complexities of policy negotiations and decision-making processes.
How to participate
The HEREDITARY Advocacy Workshop offers an excellent opportunity to connect with stakeholders across sectors, gain a deeper understanding of the European policy landscape and explore how research can contribute to societal impact beyond the laboratory.
Participation is free of charge, and researchers, policymakers, patient advocates and civil society representatives are particularly encouraged to take part.
Check out the PRELIMINARY AGENDA
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