HEREDITARY‘s ‘World Café Outcome: Priorities and Gaps’ report was released. The report captures key insights from a dynamic World Café session held on October 16, 2025, during EBC‘s Brain Innovation Days. Diverse stakeholders, including researchers, healthcare professionals, innovators, individuals with lived experience, and patient organisation representatives, collaborated to identify solutions to challenges in multimodal health data integration, explainability of AI-based risk prediction models, and metadata alignment in a federated environment. Highlights include strategies for data standardisation, inclusive data collection, cross-sectoral collaboration, ethical AI tools, and balancing EU regulation processes to advance health research and inform brain health policy decisions.
Project representatives of the Harnessing Health Data Cluster had a chance to exchange views on the topics via interactive discussions, and three key insights were identified at the end of the meeting:
- Greater standardisation is needed at every stage of the data lifecycle (from data collection and analysis to sharing), along with clearer documentation of data sources.
- Providing education and training for healthcare professionals on required data elements can support standardisation and collection of high-quality, usable data.
- Empowering patients in data sharing consent processes and building awareness of underrepresented populations fosters patient inclusion in research.
Read the full outcomes of the HEREDITARY World Café in the REPORT.
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